Bills, laws, rules, and regulations--implementing GINA
As a citizen of the United States, you are entitled to comment on actions being considered by your government. The issues of genetic privacy and genetic discrimination reached the forefront again this week as the Equal Employment Opportunity Commission (EEOC) released the text of a proposed rule for implementing the Genetic Information Non-discrimination Act (GINA).
Many people think that, because GINA was signed into law, they are now protected from insurance and job discrimination on the basis of their genetic information--not true. the "devil is in the details" applies here as in many other situations.
To read those details, check out the Federal Register for March 2. You can Google federal register gina eeoc to get the proper pages, as well as the information on how to comment.
I haven't checked lately to see how comments are handled by the recipient agency, but I remember that the agencies I am familiar with read all those comments, sorted them by category, and counted up the public's comments as well as those from commercial operations. You can bet that insurance companies and employment services, as well as employers, will comment--have you the energy and time to read about the potential effects on your future and that of your children and grandchildren and provide your own comments?
Marie Godfrey, PhD