Genetics Day on the Hill

The organization, Genetic Alliance (www.geneticalliance.org) is sponsoring a genetics day September 27 for people interested in talking personally with their representatives on two key issues: genetic testing and genetic nondiscrimination. Yesterday, I phoned in for an excellent teleconference--one of three planned this month--on plans for the day on the Hill.

September 27 is not a particularly good day for me--my husband's surgery was on July 27 and he never recovered from its effects. But, I am hoping plenty of other people will be available to take part in that event.

If you're interested, please check out the information on the Genetic Alliance site.

Two things I learned yesterday:

  • CMS (also known as the Center for Medicare and Medicaid Services, the government group that oversees laboratory testing in the US) has reversed its formed position and now sees no immediate need to set up specific regulations and oversight for genetic testing.
  • The Center for Genetics & Public Policy has done a study of 109 genetic testing services available online and will release a report soon. Since the GAO report focused only on 4 companies providing nutrigenomic services, more information is definitely needed.

More information will be posted when I learn it.

Marie Godfrey, PhD

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