Event

July 28th–July 30th, 2006 at the Bethesda North Marriott

The Genetic Alliance 2006 Annual Conference, Excellence in Advocacy, offers an outstanding opportunity for advocates, health professionals, policy-makers, industry professionals, and community leaders to participate in cutting-edge workshops, offer informative lectures, and contribute to insightful discussions. Building on a tradition of excellence, they will celebrate advocacy through collaboration and open dialogue.

Conference Details
Friday morning the conference kicks off with the Genetic Alliance Institute for Advocacy. This year, four concurrent daylong symposiums—Governance in Action, Leadership in Action, Research in Action, and Industry Advocates and Liaisons in Action—will provide intensive training for individuals involved in boards, staffs, or corporations. Friday evening will include a poster reception, as well as the opening dinner.

To download the conference program click here.

To download the registration form click here.

Saturday and Sunday, July 29-30th, are organized around four concurrent workshop tracks including services, policy, research, and information & education. Attendees can follow one specific conference path or create an “a la carte” schedule with workshops from different tracks. Conference topics will cover issues such as genetic testing, personalized medicine, newborn screening, outreach and advocacy, financial reimbursement, race and genetics, clinical trials, evidence-based information, and family history.

Throughout the conference, participants have ample opportunity during long meals and breaks to network and socialize. Saturday evening features our signature awards banquet celebrating the heroes in advocacy, reporting, industry, and health care. The conference will end on Sunday afternoon after workshops and a dynamic concluding symposium session.

They are eager to see you at the Bethesda North Marriott July 28th, 29th, and 30th. See the conference program for the complete agenda.

Marie Godfrey will be attending this meeting as a representative of Geneforum.

Geneforum is co-sponsoring the upcoming event, Human Enhancement Technologies and Human Rights, to be held on May 26-28, 2006 at the Stanford University Law School. The conference seeks to "begin a conversation with the human rights community, bioethicists, legal scholars, and political activists about the relationship of enhancement technologies to human rights, cognitive liberty and bodily autonomy."

Sponsored by: Stanford Center for Law and the Biosciences, Center for Cognitive Liberty and Ethics, Institute for Ethics and Emerging Technologies

Co-Sponsors: Stanford Program in Ethics in Society, Geneforum, ExtraLife

Co-Sponsored by Geneforum and Portland State University's Center for Academic Excellence, February 11, 2005, Portland, Oregon

Featured Speakers

• Theodore Friedmann, M.D. Director of the Program in Gene Therapy at UCSD [pdf]
• Mari Holden, silver medalist in the 2000 Olympic time trial and the first Olympic road cyclist since 1984 to win an Olympic medal in road cycling [pdf]
• Maxwell Mehlman, JD, Director, Law-Medicine Center and Professor of Biomedical Ethics at Case Western Reserve University [pdf]

(The above links point to each speaker's presentation.)